20111201
Alzheimer’s Foundation of America online community for teens,
AFA Teens
AFA Teens for Alzheimer’s Awareness the official teenage branch of the
Alzheimer’s Foundation of America
Founded in 2002 by a teenager, AFA Teens seeks to mobilize teenagers nationwide to raise awareness of Alzheimer's disease and to engage teenagers in the cause. It is aimed at teens with family members affected by the disease and those purely interested in the cause.
AFA Teens’ dedicated Web site creates an online community for teens, giving them support from experts and the opportunity to share experiences and connect with each other through a bulletin board and blog.
20110220
Eldercare Support for Caregivers online community
Eldercare Support | Senior Resources | Alzheimer's Disease Caregivers | Find Home Care: "ElderCare Online is a beacon for people caring for aging loved ones. Whether you are caring for a spouse, parent, relative or neighbor, we are committed to providing an online community where supportive peers and professionals help you improve quality of life for yourself and your elder"
20110216
Alzheimer's Association | Facebook
Alzheimer's Association: "Website:
http://www.alz.org
Mission:
To eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.
Our vision is a world without Alzheimer's disease.
Company Overview:
The Alzheimer’s Association is the leading voluntary health organization in Alzheimer care, support and research.
Facebook Page:
http://www.facebook.com/actionalz"
http://www.alz.org
Mission:
To eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.
Our vision is a world without Alzheimer's disease.
Company Overview:
The Alzheimer’s Association is the leading voluntary health organization in Alzheimer care, support and research.
Facebook Page:
http://www.facebook.com/actionalz"
Alzheimer's Foundation of America Care Connections
\"Connect with Others
AFA offers caregivers several ways to connect with other caregivers and AFA's team of licensed social workers. Reach out for care...
Care Connection
Health Central Message Forum
AGIS Ask the Experts
Care Central"
AFA offers caregivers several ways to connect with other caregivers and AFA's team of licensed social workers. Reach out for care...
Care Connection
Health Central Message Forum
AGIS Ask the Experts
Care Central"
20110215
Alzheimer's & Dementia Professionals | LinkedIn Group
Alzheimer's & Dementia Professionals | LinkedIn: "Alzheimer's & Dementia Professionals
This group provides a forum for all professionals serving individuals with dementia and their caregivers to network on advances in the field, job opportunities or to share job openings, etc."
This group provides a forum for all professionals serving individuals with dementia and their caregivers to network on advances in the field, job opportunities or to share job openings, etc."
20110213
caregiver.org: Groups
FCA: Groups: "Family Caregiver Alliance offers four different online support groups for caregivers and their loved ones:
* The Caregiver Online Group is an unmoderated group for families, partners and other caregivers of adults with disorders such as Alzheimer’s, stroke, brain injury and other chronic debilitating health conditions. The group offers a safe place to discuss the stresses, challenges and rewards of providing care for a loved one.
* The Huntington’s Disease and Movement Disorders Online Group is for anyone — diagnosed individuals, families, friends and professionals — living with the day-to-day challenges of HD, Parkinson’s or another movement disorder. The group is facilitated by a registered nurse with extensive personal and professional HD experience.
* The LGBT Caring Community Online Support Group offers a place for lesbian, gay, bisexual and transgender caregivers of adults with chronic health problems to discuss the unique issues of caring for their loved ones.
* The Link2Care Support Group is part of a secure website dedicated to clients of California’s Caregiver Resource Centers. For information on participating in this moderated group, call your local CRC or (800) 445-8106."
* The Caregiver Online Group is an unmoderated group for families, partners and other caregivers of adults with disorders such as Alzheimer’s, stroke, brain injury and other chronic debilitating health conditions. The group offers a safe place to discuss the stresses, challenges and rewards of providing care for a loved one.
* The Huntington’s Disease and Movement Disorders Online Group is for anyone — diagnosed individuals, families, friends and professionals — living with the day-to-day challenges of HD, Parkinson’s or another movement disorder. The group is facilitated by a registered nurse with extensive personal and professional HD experience.
* The LGBT Caring Community Online Support Group offers a place for lesbian, gay, bisexual and transgender caregivers of adults with chronic health problems to discuss the unique issues of caring for their loved ones.
* The Link2Care Support Group is part of a secure website dedicated to clients of California’s Caregiver Resource Centers. For information on participating in this moderated group, call your local CRC or (800) 445-8106."
20110211
The Family Caregiver Forums
The Family Caregiver Forum
Brought to you by NFCA's Founding Corporate Partner
Welcome to the NFCA's Family Caregiver Forum - a place where all family caregivers can post questions, receive support and communicate with others."
Brought to you by NFCA's Founding Corporate Partner
Welcome to the NFCA's Family Caregiver Forum - a place where all family caregivers can post questions, receive support and communicate with others."
National Family Caregivers Association
"NFCA is launching e-communities around the country to connect family caregivers to their peers in their own cities and states. Usually the most valuable and trusted resources and information for family caregivers needs to come from other caregivers within your community.
An e-community is a place for family caregivers to post questions and to seek advice on anything from 'where can I find a reliable caregiver to come in on a Sunday morning' to 'are there any local resources to help my teenagers better cope with Grandma moving into the house?' The e-communities are a great way to learn about local services with references, both positive and negative. An e-community creates a forum where members connect to one another via email. After registering, family caregivers will begin receiving emails with questions and information that is sent by other members and is received by everyone in the group. As a member of the e-community receiving these emails, it is your choice to read them or not and to respond or delete. Not every email or subject will be of interest to everyone. Family caregivers participating in the program choose what they want to read and when they want to respond on their own schedule."
An e-community is a place for family caregivers to post questions and to seek advice on anything from 'where can I find a reliable caregiver to come in on a Sunday morning' to 'are there any local resources to help my teenagers better cope with Grandma moving into the house?' The e-communities are a great way to learn about local services with references, both positive and negative. An e-community creates a forum where members connect to one another via email. After registering, family caregivers will begin receiving emails with questions and information that is sent by other members and is received by everyone in the group. As a member of the e-community receiving these emails, it is your choice to read them or not and to respond or delete. Not every email or subject will be of interest to everyone. Family caregivers participating in the program choose what they want to read and when they want to respond on their own schedule."
20110210
Support Groups for People with Early Stage Alzheimer's and Their Caregivers in Massachusetts
"Support Groups for People with Early Stage Alzheimer's and Their Carepartners in Massachusetts" from ALZ.org Mass.
20110207
creating false memories (confabulation)
Does anyone experience this? - Confabulation
Informative discussions found on the Alzheimers Online Boards
Use their "find" button to search for topics.
Confabulation: quoted from http://alzonline.phhp.ufl.edu/en/reading/Anosognosia.pdf
Informative discussions found on the Alzheimers Online Boards
Use their "find" button to search for topics.
Confabulation: quoted from http://alzonline.phhp.ufl.edu/en/reading/Anosognosia.pdf
People with anosognosia will often confabulate. Confabulation is making up an answer or responding with remarks that link pieces of information, time, places, and people that do not belong together. Sometimes people will combine memories from different events and insist that the event unfolded that way. They may describe an event as recent but it actually happened decades ago with different people. Sometimes they mix information from the newspaper or television with a personal event.
20110204
Alzheimer's Association is now an open group | LinkedIn
Alzheimer's Association is now an open group | LinkedIn: "Alzheimer's Association is now an open group
an open discussion group. All future discussions will be fully visible, searchable, and shareable on the Web. All past discussions are now closed in a members-only archive.
an open discussion group. All future discussions will be fully visible, searchable, and shareable on the Web. All past discussions are now closed in a members-only archive.
20110202
Alzheimers New Zealand
"Website:
http://www.alzheimers.org.nz
Mission:
Making life better for all people affected by dementia.
Company Overview:
Alzheimers Aotearoa New Zealand, through its 23 member organisations nation-wide provides support, care and advocacy services for people with Alzheimer's disease and dementia and their carers, family and whānau.
Facebook Page:
http://www.facebook.com/alzheimersnewzealand"
http://www.alzheimers.org.nz
Mission:
Making life better for all people affected by dementia.
Company Overview:
Alzheimers Aotearoa New Zealand, through its 23 member organisations nation-wide provides support, care and advocacy services for people with Alzheimer's disease and dementia and their carers, family and whānau.
Facebook Page:
http://www.facebook.com/alzheimersnewzealand"
20110201
Netwerk Alzheimer Nederland | "Alzheimer's Association | LinkedIn Groups
Alzheimer's Association is now an open group | LinkedIn: "Alzheimer's Association is now an open group
an open discussion group. All future discussions will be fully visible, searchable, and shareable on the Web. All past discussions are now closed in a members-only archive.
Netwerk Alzheimer Nederland | LinkedIn: "Netwerk Alzheimer Nederland
Dementie roept veel vragen op. Vragen over het ziektebeeld en de veranderingen in het gedrag. Maar ook vragen over de verzorging, veiligheid, voeding en mogelijkheden voor ontspanning. Dit netwerk is bedoeld om informatie uit te wisselen dat kan helpen om de zorg voor mensen met dementie en hun naasten te verbeteren."
Mission:
Making life better for all people affected by dementia.
Company Overview:
Alzheimers Aotearoa New Zealand, through its 23 member organisations nation-wide provides support, care and advocacy services for people with Alzheimer's disease and dementia and their carers, family and whānau.
Facebook Page:
http://www.facebook.com/alzheimersnewzealand"
an open discussion group. All future discussions will be fully visible, searchable, and shareable on the Web. All past discussions are now closed in a members-only archive.
Netwerk Alzheimer Nederland | LinkedIn: "Netwerk Alzheimer Nederland
Dementie roept veel vragen op. Vragen over het ziektebeeld en de veranderingen in het gedrag. Maar ook vragen over de verzorging, veiligheid, voeding en mogelijkheden voor ontspanning. Dit netwerk is bedoeld om informatie uit te wisselen dat kan helpen om de zorg voor mensen met dementie en hun naasten te verbeteren."
Mission:
Making life better for all people affected by dementia.
Company Overview:
Alzheimers Aotearoa New Zealand, through its 23 member organisations nation-wide provides support, care and advocacy services for people with Alzheimer's disease and dementia and their carers, family and whānau.
Facebook Page:
http://www.facebook.com/alzheimersnewzealand"
Frame It With Color | Dementia & Alzheimer's Weekly
Frame It With Color | Dementia & Alzheimer's Weekly: "(Boston) -- 'Frame it with color' might soon become a mealtime dictum for those caring for individuals with dementias such as Alzheimer's in the more advanced stages.
According to visual perception research from a team at Boston University, the use of boldly colored tableware is a mealtime aid to those with severe dementias such as Alzheimer's. Such tableware helps individuals overcome a diminished sensitivity to visual contrast, a condition often found among people with advanced dementia. With bright 'frames' for the food and beverage in front of them, study participants were found to increase by 25 percent or more the amount they ate and drank."
According to visual perception research from a team at Boston University, the use of boldly colored tableware is a mealtime aid to those with severe dementias such as Alzheimer's. Such tableware helps individuals overcome a diminished sensitivity to visual contrast, a condition often found among people with advanced dementia. With bright 'frames' for the food and beverage in front of them, study participants were found to increase by 25 percent or more the amount they ate and drank."
20100801
Here are some Talking Point updates
Please read: Talking Point updates
The main changes are outlined in the following posts, but if you have any questions or there is anything you’re not sure about, please post below or email talkingpoint@alzheimers.org.uk, and a member of the Talking Point team will get back to you as soon as possible.
1. New sub-forums
2. New drop-down menus and links to Alzheimer's Society resources
3. Members' personal menu options have moved
4. Moved buttons
5. Re-worded commands
The main changes are outlined in the following posts, but if you have any questions or there is anything you’re not sure about, please post below or email talkingpoint@alzheimers.org.uk, and a member of the Talking Point team will get back to you as soon as possible.
1. New sub-forums
2. New drop-down menus and links to Alzheimer's Society resources
3. Members' personal menu options have moved
4. Moved buttons
5. Re-worded commands
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